Founded in the summer 2025 by seven patients with igG4-rd in Barcelona with a joined mission.

Consisting of five board members with Jose´Ballarin as our president founded in september 2025.

We are on a mission to shed awareness on IgG4-rd, earlier diagnostics, better treatment and support organisations for IgG4-rd in every country in Europe and England.


The Federation is new, and there much work ahead of us:

This webpage will be upgraded and improved as we get the sufficent funds to do so.

We are registered in Brussel but each member come from differnt parts of europe.


We hope you will stay tuned, join or otherwise support us in oru mission.


On begalf of the board

Carsten Sørensen/tresaurer