About
Founded in September 2025, the European Federation of Patients with IgG4-RD based in Brussels, Belgium, aims to raise awareness about IgG4-rd, offer treatment options, and provide support to patients, caregivers, and families. Non-profit.
Initiatives
We lobby for better healthcare.
Providing comfort & understanding.
Educating the public on IgG4-rd.
Team
Chairman
Leads organization's vision and strategy.

Community Liaison
Engages and supports patient community.

Public Relations
Handles external communications and media relations.

Finance Officer
Manages organization's financial resources.

Get involved
Join us in advocating for rare disease awareness, supporting research, and connecting with a community that values your unique perspective. Make a difference today!
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