Become a member
Register as a patient to access support, updates and our community.
Register with your national association
Register with the European Federation for IgG4-RD
If you are a patient, caregiver, or family member living in a European country where a national patient association has not yet been established, we are here to support you.
Your voice matters. Your experience can help to drive research, policy change, and support others in this small community. Together, we turn individual stories into collective action.
By registering with the European Federation for IgG4-RD, you’ll gain access to:
- Personalized support networks tailored to your condition and location.
- Reliable, up-to-date medical information on symptoms, diagnosis, treatments, clinical trials, and evolving healthcare policies.
- Opportunities to participate in advocacy campaigns and patient surveys.
- A secure, private community forum to connect with others in your situation.
This registration form is simple, secure, and confidential. All data is handled in full compliance with the General Data Protection Regulation (GDPR) — EU Regulation 2016/679. Your information will never be shared, or used without your explicit, informed consent.
Patient registration form
Fill in the form below. Fields marked with * are required.
Carsten Sørensen
Patient & Treasurer, Denmark
As a co-founder and chair of the federation, I am proud to lead a community advocating for better recognition and care for IgG4-RD.
About the European Federation IgG4-RD
We are the bridge between you, the patient, be it as a direct member or through your own national association and the medical world and wider community. We connect knowledge, compassion, and advocacy across Europe for those affected by IgG4-Related Disease.
