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Advocate for IgG4-rd Patients Today

Join us in raising awareness.

Donate compassionately.

Non-profit.

One year membership for 50 euro:


https://wise.com/pay/r/JojkPOLJn0cSPuM

What we aim for

Empowering Change Through Compassion and knowledge

We strive to create a positive impact by making awarenes to IgG4-rd

Support

Support for people, caregivers and relatives living in Europe who are affected by IgG4-rd ,promote their recognition, information, representation and well-being.

Medical knowledge

Improving health outcomes by awareness, sharing newest knowledge and treatment-options across europe.

Representation

Represent the national associations of patients with IgG4-rd as well as individual patients in countries where no formal structure yet exists.

News

Temporary website public d. 22/11-2025 

Stay tuned as much will be happening 1st and 2nd quarter of 2026

Board members

Carsten Sørensen

Treasurer

Social worker, 20 years of experience from

psychiatric and somatic

hospitals in Denmark.

Knowledge of danish healthcare system, danish law, welfare services and especially understanding of the importance of mental support.

Suffering from IgG4-rd in retropetrianeum.


Mail: carsten@igg4.eu

Alexander Patsalias

Communication and marketing

Background in strategic sales management, change management, and relationship management (Segment specialities: Credit management, Energy) combines this expertise with lived experience to bridge the gap between patients and professionals.

Suffering from IgG4-rd.


Mail: alex@igg4.eu

Bert van Horck

Vice President

Successfully lead 7 companies in terms of general management. 

Owner/Director of Artistock Artist Management VOF, a live entertainment production and artist management company, managing some of Holland’s leading artists.

Suffering from IgG4-rd.


Mail: bert@igg4.eu

Marta Galindo

Board member and administrative support

Business Process Analyst at International Atomic Energy Agency (IAEA)

Suffering from IgG4-rd.


Mail: marta@igg4.eu