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Sponsors u0026 Partners

The organisations that make our mission possible — thank you.

Our supporters

Supporting our mission

We are grateful to the organisations whose support enables patient advocacy, awareness campaigns, medical board activities, and national association support across Europe.

Sponsored by
Sanofi Zenas BioPharma
Become a sponsor

Partners

Strategic partners

We collaborate with European and international organisations that share our commitment to improving outcomes for IgG4-RD patients.

ERN ReCONNET

European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases.

Visit website →

EURORDIS

The European Organisation for Rare Diseases — the voice of rare disease patients in Europe.

Visit website →

Get in touch

Interested in partnering with the European Federation? We’d love to hear from you.

Contact us →

Support

Become a Sponsor

We are lucky, in our early existence, to already receive support from some generous sponsors. But our team is desperately small and sometimes we struggle due to our flares

A rare disease

Our disease is also a rare one, even if there are tens of thousands of diagnosed and undiagnosed patients across the world. But by country it could be hundreds or thousands, a fragmented picture

Our mission

To improve the quality of life of all igG4-RD patients, we need to advocate on their behalf, allow them to meet other patients, promote improved diagnosis, treatment etc.

Get in touch

This is a hard task for a young and small federation. Please consider sponsoring us, we need your help, honestly

Contact us →
Carsten Sørensen

Carsten Sørensen

Patient & Treasurer, Denmark

As a co-founder and chair of the federation, I am proud to lead a community advocating for better recognition and care for IgG4-RD.

About us
Uncovering a hidden disease

About the European Federation IgG4-RD

We are the bridge between you, the patient, be it as a direct member or through your own national association and  the medical world and wider community. We connect knowledge, compassion, and advocacy across Europe for those affected by IgG4-Related Disease.