About the European Federation IgG4-RD
We are the bridge between the medical world and patients — connecting knowledge, compassion, and advocacy across Europe for those affected by IgG4-Related Disease.
Find your country
Browse the list below to see which European countries already have an active IgG4-RD patient association. A solid yellow dot means there is an active association — click the row to visit their website. An outlined dot means we are still looking for someone to start one. The Federation provides legal templates, financial support, branding, and end-to-end guidance as soon as you have three patients ready to take it on.
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France FRVisit website
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Spain ESVisit website
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Albania ALStart your association
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Andorra ADStart your association
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Armenia AMStart your association
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Austria ATStart your association
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Azerbaijan AZStart your association
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Belgium BEStart your association
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Bosnia and Herzegovina BAStart your association
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Bulgaria BGStart your association
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Croatia HRStart your association
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Cyprus CYStart your association
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Czechia CZStart your association
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Denmark DKStart your association
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Estonia EEStart your association
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Finland FIStart your association
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Georgia GEStart your association
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Germany DEStart your association
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Greece GRStart your association
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Hungary HUStart your association
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Iceland ISStart your association
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Ireland IEStart your association
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Italy ITStart your association
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Kazakhstan KZStart your association
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Kosovo XKStart your association
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Latvia LVStart your association
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Liechtenstein LIStart your association
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Lithuania LTStart your association
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Luxembourg LUStart your association
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Malta MTStart your association
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Moldova MDStart your association
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Monaco MCStart your association
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Montenegro MEStart your association
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Netherlands NLStart your association
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North Macedonia MKStart your association
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Norway NOStart your association
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Poland PLStart your association
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Portugal PTStart your association
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Romania ROStart your association
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San Marino SMStart your association
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Serbia RSStart your association
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Slovakia SKStart your association
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Slovenia SIStart your association
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Sweden SEStart your association
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Switzerland CHStart your association
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Turkey TRStart your association
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Ukraine UAStart your association
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United Kingdom UKStart your association
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Vatican City VAStart your association
National Associations
Visit the websites of our member associations to find local support, resources, and community in your country.
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The main goal of the Spanish IgG4-RD association (AE-IgG4) is to improve patient care and raise awareness of IgG4-RD. For this purpose, along with the medical board of committed national experts, it directly supports patients, provides educational resources, and facilitates connections with reference centres across Spain.
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The main goal of the French IgG4-RD association is to improve patient care and raise awareness of IgG4-RD. For this purpose, along with the medical board of committed national experts, it directly supports patients, provides educational resources, and facilitates connections with reference centres across France.
Carsten Sørensen
Patient & Treasurer, Denmark
As a co-founder and chair of the federation, I am proud to lead a community advocating for better recognition and care for IgG4-RD.
Is your country not yet on the map?
Voices From Our Board
Working together across borders is what makes real change possible for rare disease patients.
Being part of this network means our patients are no longer invisible. We finally have a collective voice that reaches the European institutions.
Starting a patient association can feel overwhelming, but the Federation gives the tools and the connections so you easily can succeed.
About the European Federation IgG4-RD
We are the bridge between you, the patient, be it as a direct member or through your own national association and the medical world and wider community. We connect knowledge, compassion, and advocacy across Europe for those affected by IgG4-Related Disease.
