Press release

\u003cp\u003e\u003cstrong\u003eToday, 21 May 2026, the European Federation of igG4-RD patients launched\u003cbr\u003epublicly, showcasing the stunning specifically designed house style, that joins the\u003cbr\u003eHuman aspect of patients to the medical world. The Federative website is\u003cbr\u003ewww.igg4.eu.\u003c/strong\u003e\u003c/p\u003e\u003cp\u003eThere is unity between the house styles of the Federation itself and the national\u003cbr\u003eassociations it will support, to promote visibility and awareness, with the French\u003cbr\u003eassociation being the first one to use the design. The Federation hopes to have\u003cbr\u003eat least 4 national associations by the end of ’26 with the goal of helping create\u003cbr\u003epatient associations in every European country.\u003c/p\u003e\u003cp\u003eThe Federation was created in June 2025 and officially registered in Brussels in\u003cbr\u003eSeptember 2025. The Federation has the support of ERN ReConnect and various\u003cbr\u003ePharma companies involved in igG4-RD research such as Amgen, Sanofi, Zenas\u003cbr\u003eand others.\u003c/p\u003e\u003cp\u003eAn agreement has been reached with prominent IgG4-RD specialists such as Drs\u003cbr\u003eEmanuel Della Torre and Tobias Alexander to coordinate the federative Medical\u003cbr\u003eBoard. The clear intent is to speak with a single voice regarding diagnosis,\u003cbr\u003etreatment and outlook.\u003c/p\u003e\u003cp\u003eThe board is composed of patients, and they are all proud to be involved in this\u003cbr\u003eventure, which aims to give the thousands of patients suffering from IgG4-RD in\u003cbr\u003eEurope a voice. A voice which will help find improved diagnosis, treatment and\u003cbr\u003eoutlook regarding this incurable and often debilitating disease.\u003c/p\u003e\u003cp\u003eThe aim of the federation is to support patients in the wider European region in\u003cbr\u003eunderstanding their disease and obtain best proactive medical care whilst\u003cbr\u003esimultaneously acting as a bridge towards the industry and academic world.\u003cbr\u003eThe Federation will be able to assist patients in all European countries to set up\u003cbr\u003enational associations with the help of a specific toolkit which will include financial\u003cbr\u003ehelp, assistance in legal and banking matters, provide ready-made national\u003cbr\u003ewebsites for rapid deployment as well as support for social media presence and\u003cbr\u003eother form of support.\u003c/p\u003e\u003cp\u003eWhilst the federation is intended to gather the various igG4-RD patient\u003cbr\u003eassociations it will meanwhile accept individual members of countries where no\u003cbr\u003esuch association yet exists.\u003c/p\u003e\u003cp\u003eThe Federation is keen to engage with all organisations that wish to support the\u003cbr\u003epatient advocacy initiative whilst continuing to put the interests of patients at its\u003cbr\u003ecore.\u003c/p\u003e\u003cp\u003e\u003c/p\u003e\u003cp\u003eENDS\u003c/p\u003e\u003cp\u003e\u003ca data-type=\u0022link\u0022 data-id=\u0022https://igg4.eu/app/uploads/2026/05/IMG-20260414-WA0007.jpg\u0022 href=\u0022https://igg4.eu/app/uploads/2026/05/IMG-20260414-WA0007.jpg\u0022 target=\u0022_blank\u0022 rel=\u0022noreferrer noopener\u0022\u003e\u003cstrong\u003e\u003cspan style=\u0022text-decoration: underline;\u0022\u003eDownload portrait photo of Jose Balarin, Chairman\u003c/span\u003e\u003c/strong\u003e\u003c/a\u003e\u003c/p\u003e\u003cp\u003e\u003ca href=\u0022https://igg4.eu/app/uploads/2026/05/Press-release-Final-branded.pdf\u0022 type=\u0022link\u0022 id=\u0022https://igg4.eu/app/uploads/2026/05/Press-release-Final-branded.pdf\u0022 target=\u0022_blank\u0022 rel=\u0022noreferrer noopener\u0022\u003e\u003cstrong\u003e\u003cspan style=\u0022text-decoration: underline;\u0022\u003eDownload press release as PDF\u003c/span\u003e\u003c/strong\u003e\u003c/a\u003e\u003c/p\u003e