Our People
Federation Board & Medical Advisory Board
Our federation is led by a dedicated board of patients from across Europe. Our Medical Advisory Board vets any publication relating to the symptoms, diagnosis, treatment and outlook of the disease
Federation Board
Leading patient advocacy across Europe
José Ballarin
Patient & Chairman, Spain
Carsten Sørensen
Patient & Treasurer, Denmark
Alexander Patsalias
Patient & Communications Director, Netherlands
Marta Galindo
Patient & Secretary, Spain
Medical Board
Expert clinical guidance and current science
Dr. med. Tobias Alexander
Autoimmunology & Coordinator
Dr. Emanuel Della Torre
Translational Immunology & Coordinator
Dr. J.A.M. van Laar
Internist-clinical immunologist
Dr. F Martínez Valle
Head of the Department of Internal Medicine Vall d’Hebron University Hospital / Autonomous University of Barcelona
Dr Emma Culver
Clinical Lead, Gastroenterologist and Hepatologist
Carsten Sørensen
Patient & Treasurer, Denmark
As a co-founder and chair of the federation, I am proud to lead a community advocating for better recognition and care for IgG4-RD.
Uncovering a hidden disease
About the European Federation IgG4-RD
We are the bridge between you, the patient, be it as a direct member or through your own national association and the medical world and wider community. We connect knowledge, compassion, and advocacy across Europe for those affected by IgG4-Related Disease.
